Ethical usage of data accumulated by technology: what to do or not to do?

Thematic area of learning: 
Artificial Intelligence for AT, Accessibility, and Inclusion Ethics, Safety, Security, Vulnerability, Gender Aspects and Bias of using ICT/AT
Typical target learners: 
Developers implementing technology in long term care, Policy, Long Term care providers,
Learning outcomes of the session
Please list the 3 most relevant learning outcomes by completing the following phrase: At the end of the session the participants will ...
Outcome 1.: 
Challenges that arise when making data a prominent topic in LTC
Outcome 2: 
Possible ways to address these challenges, e.g. by developing internal scientific committees
Outcome 3: 
Learn that ethical considerations related to scientific research in LTC might differ from the ethical considerations in daily care provision in LTC.
Proposed format: 
Mix Workshop / Seminar
Lecturers / teachers / experts / support figures that will be involved: 
Sil Aarts - came in via premature "inclusion forum submission"... Form filled by A.Petz, 21.01.2022
Description/Abstract: 
While technology is advancing rapidly and volumes of data continue to pile up, currently the implementation of technology in long-term care for older adults (LTC) is focused on the technology itself rather than on the corresponding data it accumulates: much of this data is currently perceived as a by-product of care delivery, rather than a central asset to improve the quality thereof. However, by collecting data, for instance regarding socio-demographic characteristics and health problems in electronic heath records, automatic drug dispensing, wearables and technologies such as assistive robots and sociometrics, care processes can be supported and improved. Hence, data is often referred to as ‘the new gold’. However, with the rise of data accumulations in LTC, data research and the corresponding ethical issues become an ever-growing topic, resulting in an ongoing societal debate. This seminar/workshop will focus on the ethical questions that arise when collecting and analysing data in a health care echelon such as long-term care for older adults, in which some of the most vulnerable people in society are residing. In addition, this workshop is aimed at espousing multidisciplinary dialogues, among a diverse set of stakeholders, regarding data research and ethical considerations. Leasons learned 1. Challenges that arise when making data a prominent topic in LTC will be discussed. 2. Possible ways to address these challenges, e.g. by developing internal scientific committees, will be put forward. 3. Learn that ethical considerations related to scientific research in LTC might differ from the ethical considerations in daily care provision in LTC.